KD-CAR: Kawasaki Disease Coronary Assessment Registry

Kawasaki Disease can lead to significant changes in the coronary arteries, particularly coronary artery aneurysms. Due to the disease’s low prevalence, there is a lack of systematically collected clinical data. In particular, the data available on long-term complications caused by coronary artery changes is very limited.

As a result, key questions regarding the optimal long-term clinical management of these patients cannot currently be adequately answered:

• Which diagnostic procedure should be used for which patient group and for what purpose?
• Which treatment options (medication, intervention, surgery) are most effective in the long term?

These unanswered questions make evidence-based care difficult and require targeted scientific investigation. Therefore, we started the European Kawasaki Disease – Coronary Assessment Registry (KD-CAR).

The Kawasaki Disease – Coronary Assessment Registry (KD-CAR) aims to collect standardized and systematic follow-up data from patients with Kawasaki Disease and coronary artery changes internationally. The data will then undergo scientific analysis.

A particular focus is on the longitudinal documentation of the use of various imaging techniques (cardiac CT, cardiac MRI, cardiac catheterization) in relation to the patient’s clinical status and therapeutic measures.

The aim is to map the current state of care for this patient group and to improve future care through a deeper understanding of long-term coronary artery complications.

Structured data collection is carried out via the digital platform REDCap.

All centers that treat Kawasaki patients with coronary imaging can participate:

1. Send us the filled in user agreement by email.
2. You will receive a confirmation from us as well as the login data for the platform.
3. After completing the registration process, you can enter new patient data at any time and view and edit existing cases.

Please do not hesitate to contact us if you have any questions or require further information.